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Dracula's Lament

Today Matthew told me about a cartoon in an issue of Nick Magazine that depicted two vampires. One of them looked really dejected and when his fellow vampire asked him what was wrong, the sad one told him that he failed his blood test. This was definitely an appropriate cartoon for Matthew to read today--I also failed my blood test this morning.

During one of my first visits to the oncologist’s office they ran lab tests on my blood to get a baseline reading of my white and red blood cell counts, among other things. They gave me a copy of the lab report at the time so that I could use it later to compare future lab test results. The report that I received today looks dramatically different from the report I received back before chemo began and certainly explains how awful I’ve been feeling for the past few days.

The normal range for white blood cell counts is between 3.6 - 10.0 units. (I’m not going to get all technical and actually write down the unit of measure here…you’ll be able to tell from the numbers how low the count is.) In June my white blood cell count was 8.4—right in the middle of the range. My lymphocytes (one of the white blood cells they track) were at 24.4 out of a normal range of 29.5 – 51.1, so they were marked as LOW on the report. My granulocytes, another white blood cell they track, were 5.8 out of a normal range of 1.4 – 5.5. I seem to recall that I thought I might be fighting off a cold on the day that was done, which explains the high granulocyte count and low lymphocyte count. They are both infection fighters, and their levels were off because they were busy protecting me from the cold (which I never got). Today my white blood cell count was at 0.9 (again, the reference range is 3.6 – 10.0). My lymphocyte and granulocyte counts? Both at 0. (Reference range is 29.5 -51.1 for lymphocytes and 1.4 – 5.5 for granulocytes.)

What this all means is that despite the Neulasta shot my blood cell counts are not recovering from the chemo treatment. It explains why I am feeling so tired and it means that I have absolutely no defense against illness right now. The nurse scared me sufficiently about illness today that I ran (okay, I didn’t really run…I walked very slowly) to Target to buy Chlorox wipes and Purell. I have banned poor Blake from being anywhere near me (he has a cold) and I have been washing my hands constantly. I’m a germophobe anyway…this just plays right into all my OCD germ behavior.

The nurse did tell me that I am probably at my nadir, or lowest point, and that they expect the counts to climb again before next week’s treatment. If they don’t, however, I think the treatment might have to be delayed. (I’m not positive about that, but seem to remember the doctor or nurse telling me that.)

While I was at the doctor’s office today I spent about 15 minutes talking with another breast cancer fighter whose treatment schedule is exactly one week ahead of mine. I met her briefly at my first appointment last week and was happy to see that today, the day of her second round of AC, she looked great and seemed to be feeling pretty good. We compared side-effects for awhile, and it was wonderful to talk with someone else who experienced so many of the same things that I did in the past week. She gets kudos from me for her grit, however; the Saturday after her first treatment she attended a family wedding. I couldn’t even get up off the couch on Saturday. She did tell me that she thinks she paid for it over the next three days, but I am still duly impressed that she even attempted it.


Comments

I am so glad to hear about your friend who is having an easier time of it after the second treatment- I will keep good thoughts that you will experience that same thing! Thanks for all of the other good info, too- I had never heard of IBC. Wishing you a good day tomorrow (one at a time, right?!) and a restful weekend at the cabin.

Hang in there, Kim, things WILL get better... Your body is in major shock right now, so just take it easy...

We went through the SARS scare here a few years ago (we were right in the middle of it, close friends of ours nearly died of it), and so I completely understand your fear of germs. Be careful with the Purell, don't use too much, or it will badly irritate your skin. Anti-bacterial soaps are best, and then LOTS of moisturizer. It's good to be vigilent, but don't let it steal your sanity!

Thank you for posting Whymommy's piece... I have received so much feedback from my own posting of her words, and I am shocked by how many people have never heard of IBC... Word is getting around, and thanks to YOUR blog, and Whymommy's, we will save many women's lives (and maybe men's, who knows? Although it is extremely rare, THEY can get breast cancer, too...)

It may take a few days for the Neulasta to kick in. My wife's white count fluctuated quite a bit for several days. Your red count might be low as well. Check your lab report.We usually keep several bottles of hand sanitizer around the house, A bleach spray cleaner is not a bad idea either. The big thing is to avoid crowds. You might want to consider wearing a mask if you have to go out. At least until your white count recovers. Keep your head up and take care of yourself. Things will wet better.

Kim, Rest as much as you can... and by all means, stay away from the walking petri dishes. ;-) I know that's the hardest medicine to swallow but it's so important. Do the other stuff, lots of vitamin C, etc. No anti-oxidants, tho. You don't want to flush out all those chemicals you just went thru so much to get in there. Thanks for the kind words, also.

Crap. Are they calling it neutropenia? I saw my counts yesterday for the first time and it scared the living daylights out of me. I'm not critical or housebound, but well in the danger zone.

Do purell. Do (let someone else do) the clorox wipes. But hang in there and know that your body is now recovering, day by day.

Thinking of you and praying for you, friend.

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