On the Road to Recovery
This past weekend was another rough post-Taxol weekend. Everything happened exactly as it did the first time, and there is some comfort in that; it’s good to be able to predict how I’m going to feel on any given day. The discomfort began on Friday afternoon, and by Friday evening it had turned to pain. This time I took pain meds before I went to sleep which helped me make it through the night. The meds didn’t seem to lessen the pain, but they knocked me out and allowed me to sleep through it. By Saturday morning I was in a lot of pain.
The best way to describe it is to say that it is like that all-over achiness that you sometimes get when you have the flu. (I think. I actually never get that achiness so I’m just guessing it feels like that.) However, it’s more painful than mere achiness. Every single inch of my body hurt on Saturday. It hurt if I pressed a finger against my arm or my chest or my scalp or my leg. My bones hurt, my muscles hurt, and even my skin hurt.
By Sunday morning the pain began to lessen, and by last night it was mainly just in my hips and legs. This morning my legs and hips hurt, but the pain continues to lessen bit by bit. If things continue as they did last time, I expect to still have some discomfort through Wednesday but it will be a little bit less each day.
As for other side-effects…there aren’t too many. My ability to taste was off a little bit on Friday night and Saturday, but gradually returned throughout the day yesterday. I still can’t taste fully, but it is not nearly as bad as it was with the AC. I am also still very tired, but I have come to the conclusion that I’ll be dealing with that until I’m finished with all of this. I also experienced a bit of numbness in my hands and feet this time, which is a common side-effect of Taxol. It seems to be getting better today, but I will continue to monitor it.
But here’s the good news. My hair is coming back. A week or so ago I began to notice very fine, thin hairs growing in the completely bald patches on my head. At first, I chalked it up to my imagination. I thought that because I wanted it so badly I was probably just seeing hairs where there weren’t really hairs. As the week progressed, however, more of those little baby hairs have appeared and now I only have one completely bald patch left on my head. (And even that has a few hairs covering it.) I’m not sure if you would even be able to see the hairs unless I pointed them out to you, but they are definitely there. They are dark blond as far as I can tell…we’ll see what happens as they fill in.
There’s more good news, too, which I will share with you in a separate post.
Comments
Great news about your hair. Yours stated coming back the same time as my wife's. Glad that you're feeling better.
Posted by: Joel Maners | October 8, 2007 01:53 PM
I love me some good news! Shame on you for making us wait for the rest. I've done my part and voted. It's the least I can do after everything everyone did for me... I wish I was closer to do more.
Posted by: imstell | October 8, 2007 06:43 PM
Kim,
I found your blog through Diane, and wanted you to know I will comit to praying for you through your journey with cancer. I was priviledged to have a best friend who battled with cancer and was able to be with her through it, so I definately know about the journey. I will pray.
Posted by: Paulette | October 9, 2007 11:46 AM
Kim,
I found your blog through Diane, and wanted you to know I will comit to praying for you through your journey with cancer. I was priviledged to have a best friend who battled with cancer and was able to be with her through it, so I definately know about the journey. I will pray.
I went and voted for you and do hope you win!
Posted by: Paulette | October 9, 2007 11:47 AM
Kim,
I feel that pain of taxol just reading your post. I had the same experience. I have a high pain threshold but the taxol pain was unlike anything I'd had before. I was immobilized on my first tx and when the 2nd, 3rd and 4th I used tylenol 3, slept through it and found it much more bearable.
The numbness is also part of the s/e's...but determination to cope goes a long way!
Glad to hear the hair is coming back...how are the eyebrows and eyelashes??
Posted by: sherry | October 9, 2007 05:02 PM
Kim,
I found you through "Especially Heather". Voted for ya too!
I too was in agony after my taxol. I have a high pain threshold and asked my husband NOT to touch me when he tried to comfort me. I sobbed 2 nights thru my whole ordeal, and that night was one of them.
My oncologist and nurses told me to take extra strength tylenol every 4 hours for 5 days before treatment. It was AMAZING how much it helped! The first one is the worst though.
Prayers for you!!! My diagnosis was 9 years ago! Still kicking and annoying my dh and kids!
Hugs
laurie
Posted by: Laurie | October 10, 2007 07:45 PM
Kim,
I found you through "Especially Heather". Voted for ya too!
I too was in agony after my taxol. I have a high pain threshold and asked my husband NOT to touch me when he tried to comfort me. I sobbed 2 nights thru my whole ordeal, and that night was one of them.
My oncologist and nurses told me to take extra strength tylenol every 4 hours for 5 days before treatment. It was AMAZING how much it helped! The first one is the worst though.
Also, the loss of hair was the WORST. Your hair post is perfect and very eloquent!!!
Prayers for you!!! My diagnosis was 9 years ago! Still kicking and annoying my dh and kids!
Hugs
laurie
Posted by: Laurie | October 10, 2007 07:49 PM